Tuesday, May 27, 2014

The Saga Continues...

About as fast as we got home from the hospital the oxygen company was at the house to get things all set up for us.  They were here for a long time teaching and explaining things.  My Mom and my niece Meredith were in the kitchen trying to thaw some spaghetti that the Chef had made for me to have on hand in case I had company show up for dinner.  We all finally got to eat and Mark got my C-Pap machine set up and we visited for a bit and Meredith left and we all went to bed.  I slept so good being at home in my bed and the C-Pap helped me sleep like a baby.  I only woke up once to use the bathroom but I slept till 8:00 the next morning.

Mom and Dad were ready to go home but I asked them to stay to help Mark lower our bed as I had the dickens trying to get in it.  I had been sleeping sitting up in the media room for months.  We had put out bed up on risers many years ago and I needed the bed to be easier to get into.  The agreed to stay and I had follow up visits to schedule with the Dr.'s and to try and get my sleep study scheduled.  I got the sleep scheduled really quick as they were able to put me on the schedule for Saturday night.  Mom, Dad and I had also decided to drive out to Trader Joe's as my Dad loves their cheap wine and I wanted to get some things that Kathy had suggested for lunch.  I had also had a phone session with her because I wanted to get this weight coming off again.  I was still scared to death that I was going to die and it could happen at any moment.  While I was getting ready I got really sick to my stomach and we didn't go.  I needed to stay close to home.  Mark came home to get the tubing to my C-Pap to exchange out for one that was longer.  It was just too short.  We just hung out at the house and I called the Sleep Center and they cancelled my sleep study.  They said that it was important that I was feeling really good to get a good test.  That night Dad and Mark fixed the bed and everything was good to go.

Mom and Dad left the next morning and our daughter Stacey called and wanted to come home.  She had been upset with all that had been going on with me and she just wanted to be here and have some family time.  She told us that she was going to drive home on Monday.  I was so touched by her coming but worried if she was going to be bored to death because I was still having such a hard time getting around.  

Also on Saturday I started my breathing treatments and I did one in the morning and then again that night and I had another one on Sunday morning.  Sunday afternoon I felt funny in my chest and I checked my heart rate with the dear old phone app and sure enough it was beating in the low 100's.  We called the cardiologist and told him what was going on and about the breathing treatments and he instructed me to stop the breathing treatments as that was causing my heart to race.  He told me that he would talk to the lung Dr. and they would figure out what I could use as a breathing treatment.  My heart did eventually calm back down.

Stacey got away late on Monday so she didn't get in till much later than we all expected but it all worked out because Mark had an appointment with H&R Block to get our taxes done.  We sat up for a bit once Stacey got in and then we all hit the hay.

Tuesday, Stacey and I just hung out around the house and talked about things that we wanted to do while she was here.  We made plans to do a little shopping the next day and possibly going to the show while she was here.  It sure was better than sitting around the house staring at the 4 walls and watching TV.  We were happy doing that for one day.

I forgot to tell you that on Monday I had a meeting with Dr. Michel.  I got dressed, made sure that I had a full tank of oxygen to haul with me.  Got it in the car, got myself in the car, got on the oxygen, drove to the Woodlands, got it all out of the car and up to her office.  The meeting wasn't a good one!

It seemed that all of a sudden they were concerned about my weight.  What?  Duh?  You have sat there over the last 15 months and watch me put on 50 lbs and you want to get concerned now?  Now after I spend nearly a week in the hospital where my weight seemed to be the biggest issue and cause of my problems?  I was mad as she talked to me about going to Nashville to check into a facility that would be equipped to handle all my medical situations.  All I could do was think that I was not going to be far from my cardiologist and my pulmonary Dr. after what all I had been through!  Nope it wasn't going to happened.  I just sat and listen as Dr. Michel gleefully told me all about the facility.  She wanted me to call and given them my insurance information and she would make sure that they could take care of all of my medical needs and challenges.  Once she got through I said to her "Dr. Michel, why are ya'll so concerned about my weight now and not 50 lbs ago.  I reminded that I started seeing Kathy when I was in the 380's.  At Christmas I was in the 430's!  I was hot!  You will not believe what she did!  She goes throwing up in my face every single little disagreement that I had with Kathy and reminded me that she had been trying to get me to go to a facility since January.  Well, I wasn't buying into her bull crap.  I was furious, yet I kept my cool.  

When I got all settled in my car with my oxygen and stuff and I was worn out dealing with that and was not real happy about the whole experience of lugging oxygen around.  I called Mark and told him what had happened.  He was just as furious as I was! He said to me "You are not going anywhere.  You are staying right here where ALL your Doctors are and THEY will be taking care of you!" He then told me that he thought Dr. Michel had lost her mind after what all I had gone through.  I had to agree.  It was then that I made the decision that I needed to take a break from seeing them.  I needed to concentrate on my health and getting this weight off.  I don't want to die, I'm not ready for it and I needed to do what I could do to start saving my own life.  I didn't want to burn bridges but I decided that I wasn't going back.  Before the next appointment came around I wrote Dr Michel and Kathy a email telling them that I was going to take a break for now and just work on things myself!  I'm sure they thought I was a nut case but I frankly don't give a crap!

Now back to Wednesday!

I'm starting a new post!

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